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DonnaReagan
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Posted: Tue Mar 6th, 2007 02:37 am |
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EveAvent
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Posted: Thu Apr 19th, 2007 08:44 am |
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I got a diagnosis in 1990 that I was depressed after the death of my only child. Ok, so now what? Why are my glands swollen and i run fever every night? Why am I so tired I can't walk into my kitchen? And, hey, why does EVERY bone in my back feel like it's breaking? "That's all depression" they state.
So I went from a 35 yo busy, happy, energic person to 90 yo slug overnight. I took their medicines and they made me feel worse. I did that for about 6 months. Then went searching for better answers. Well...that meant test. Expensive test. Ok, do them. CBC, thyroid panel, I demanded an EBV test. All test came back normal except the EBV, which was 1,244! They said it was normal. It indicated that I had had mono in the past!@
Began treating all the symptoms with new expensive drugs that just made me very nervous and feel crazy. Finally went to an internal medicine doctor - a woman no less. I'm thinking NOW we're gonna GET somewhere. She was kind, spent 2 hours taking my history, felt my sore joints and proclaimed that I had CFS. Yea!! So doc, what do we do for CFS? Well, you take this very mild antidepressant called Amitriptaline and sleep on schedule, exercise and you will improve. Pay at the front. $2,500.00 (I gained 30 lbs in 30 days on the drug)
Forward to 1996...My mom has just died of ovarian cancer at the age of 63. I am a wreck of a person. I feel so guilty that I was too sick to help her more. Now my pain is so unbearable that I begin to fantize about dieing myself. But my husband, my business, my dogs...
Soon after that my younger sister tells me that she has gotten on the Lubbock Methadone Program! I'm appalled. But she begins to do SO much better that before I know it, I'm being coached on how to appear to be a hard core drug addict. Very soon I am on 60 mg of Methadone myself and angels come down from the sky and I feel 100% better.
I had to pick up the drug each day in person. Take it in front of a counselor. Each month was subject to an "observed" UA. Who cared, the pain was gone. I was able to run my business, have a social life and feel great.
I stayed on Methadone at $300/mo for over 10 years. It had long since stopped really working, but it was better than nothing. I just tired of all the crap at the clinic. I was down to a 20mg dose and paid the same as the 120mg dose folks and just decided to detox myself off. Whew!
Within a week of that I was on my knees begging God almighty for the answer. That was in Dec. 2006. Within a week I found the blog and here I am. Determined to kill this crap and recapture what's left of the time I have on earth. AND to help as many people as I can along the way.
____________________
Never let the disease dictate who you are for more than 2 days in a row. Fight Back!!!
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DonnaReagan
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Posted: Mon Apr 23rd, 2007 04:52 am |
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Eve -
Your story just amazes me! Not the part about trouble finding a doc with a brain AND a heart; but the part about going to the methadone clinic EVERY DAY.
I can't imagine having to force yourself to fake being a drug addict EACH day just to get adequate pain control!
You are an amazing woman, Eve, and I'm so glad you finally at least have a diagnosis; and I hope that your doc can keep your pain under control too!
I hope you consider writing your story for further / wider publication as you move forward in your healing journey. I think it will be an inspiration to others, AND it speaks VOLUMES about the ignorance & vitual medical abuse that we Lyme patients experience.
You take care of you -- and know along the way that your courage & compassion, and your growing knowledge about this disease will help others combat that ignorance & abuse that you have experienced far too much of!
Love & Hugs,
Donna
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rivergem
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Posted: Sat Apr 28th, 2007 05:19 am |
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Eve, manna to you for putting yourself out there.
I have enjoyed your posts, as well as Donna's replies. Thank you both. I'll get to this someday soon.
Rivergem
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Eve Avent
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Posted: Sat Apr 28th, 2007 10:13 am |
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You know Donna, I've often thought about writing a book. Okay, I know I'm no one, but I've survived some really startling situations. I was a juvenile delinquent starting at age 13, then my dad took a job in Germany. My mom was British and it put us close to them. My antics in Germany alone would make some interesting reading! (I was eventually deported for conduct issues at 15!) And that was just the beginning. The past decade has just been brutal. My parents died within 2 years of each other and they were in their early 60's, shortly thereafter my little sister died from botched surgery, my best friend of 20 years succumbed to Aids and not to mention my child committed triple homicide and suicide at the ripe old age of 16!!!
I lived in New Orleans for 5 years and THAT was some interesting stuff. Worked as a bartender on Bourbon street and girl, I have seen it all.
Not to mention, I was at work at Texas Tech as a secretary and was attacked and raped in the freaking ladies room, which really just made me mad, but still... (3 broken ribs and a bad attitude to show for it) I still hate public bathrooms with no locks on them.
My brain is so confused most of the time that I can't imagine how I could ever put it in a cohesive readable form. I wonder how the ding bat "stars" write books?
But I'm not going to ask "Why me?" because there's no use in that. I would love to show people that survival is possible because that is what I consider myself a Survivor. I was the black sheep in my family for the first 20 years of my life, but ultimately, they came to appreciate and depend on my "independent" spirit...ha.
I hate being stuck in Buttock Texas. My dad took a job here in the 70's at Reese Air force Base and I married 2 different handsome cowboys and now am just "stuck" here. I loath the Bushies and the big hair junior leaguers so I just stay the f--- home. Becoming a real recluse.
Eve
(would you look at the time of this post???)
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rivergem
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Posted: Wed May 2nd, 2007 08:26 am |
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Well, after reading Eve's life, this will sound truly boring, but here goes...
I discovered a 2 1/2 inch, round rash on the back of my leg in '88 or '89. Having never seen anything like it, I asked my parents about it. Neither my dad who was a pharmacist, nor my mother who was a nurse, had ever seen anything like it either.
It was while I still had the rash that my dad called my attention to a half page article in the newspaper, from the county health department, about lyme disease. It fit me to a T. Even though I never saw a tick on me, I had spent countless hours on my husband's rural property where he hunted deer, AND, I had a bull's eye rash! I ran right over to the county health department, expecting (ha, ha) to see someone who could confirm this rash!
Walking in the the office, I showed a lady at the desk my bull's eye rash. She raised her eyebrows and said, "I don't know what THAT is, but I can tell you right now, THAT is not lyme disease"! Mortified, I slunk away. (In retrospect, she could have been a receptionist, for all I know). Eventually, it went away, and that was that. At least, I thought it was.
Eventually, I was diagnosed as hypothyroid, Hashimoto's Thyroditus, an autoimmune disease where your own immune system attacks itself. Genetically speaking, I believe the diagnose because my mother has grave's disease, an autoimmune disease with hyperactive thyroid, and my daughter has celiac disease, an autoimmune disease of the small intestine (which cannot tolerate wheat, barley, rye or oats) and she is also hypothyroid.
However, when I first started thyroid medication, I got even worse, sleeping 20 to 22 hours a day, for about 3 weeks. I had extreme sensitivity to the sun and had to wear sunglasses even getting to the car! Each week I went back to the doctor, asking if this was normal? I thought I should be getting better... I even remember my husband coming up to me in one of those brief moments of wakefulness, telling me, "I just want you to know, that I'll not leave you, I will be with you while you are getting through this"... ?? It had not even occurred to me he could be thinking along those lines, and I wasn't coherent enough to vocalize a response. (I realized much later, that he was working through his own history of illness and rejection, and thought I would be comforted by his declaration, ha). Heck, I couldn't even watch regular television because I couldn't follow a story line. All I could sit through was some old and familiar movies, while I came in and out of conscience.
Eventually I was sleeping less, but started researching on the internet, because I was hurting so bad. I had a diagnose of Chronic Fatigue and Fibromyalsia, by this time, and I woke up everyday feeling like I had been run over by a truck. I ached like I had just started a brand new rigorous workout and was severely out of shape. The severely out of shape was the only part that was true, though. I learned enough about autoimmune thyroid to ask for medication that had T3/T4 combination. (That is another story). The aches and pains somewhat diminished, but I still felt like a slug. An Ebstein Barr test reveiled that sometime in the past I had had mononucleoses. Go figure...It was after all this I got the Hashimoto's Thyroditis diagnose by a endocrinologist.
In 2003, I went to another doctor (number 3) by a friend's recommendation--that this doctor was getting great results for Chronic Fatgue. This doctor (an internist with a minor in infectious diseases) did a chest xray, an EKG, and tested me for LYME disease. Having not thought about lyme disease for 14 years, I thought (but did not communicate to my doctor) this will settle that question. It came back negative.
For 1 1/2 years, I was under this doctor's care for CFS. The protocol helped--mainly boosting my natural killer cells, but I seemed, once again, to hit a plateau. When I asked if the test for lyme disease was conclusive, she replied, no, it was only a screening test and if I thought I might have lyme disease we needed to do a test with the foremost lab in parasite testing--IgenX out in California...
I was positive by IgenX standards, as well as by CDC standards.
So far, I have had a solid year on doxycycline. But, when I had an episode of driving in complete bewilderment of where I was, even though I was practically in my own backyard, my doctor put me on Rocephin...and I'm still on it, eight months later...that, and Adderall and Neurontin, are my 2 best friends, they get me through each day...that and my wonderful husband, who HAS stuck by me all these years...feeding me, helping raise our 3 pre-teens into adulthood, cooking, washing clothes, and helping me get out the door to a full time job that has helped me stay in the land of the living (even though he had a full time job), and did I mention, cooking, etc.
So, that's my story...And, I'm sticking to it...and, I'm ready to hear your story...
Rivergem
Last edited on Wed May 2nd, 2007 08:58 am by rivergem
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Eve Avent
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Posted: Tue May 8th, 2007 07:50 am |
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Lordy Girl, we got the exact same story. (except the part about me pretending to be a hard core junkie so I could get narcotics so I could keep living part) Ha, Wilson's (Temperature) Thyroid Syndrome was where I hung my hope and our freaking money!! Oh, and the Epstien Barr thing...same as you. If you're ever in a coma and have nothing better to do, go to the Wilson's website and do a run through their symptoms list. You'll see why I thought I hit pay dirt. Same as you...konked and zonked out. Low body temp my ass.
Love your story and HATE your story. We all have pretty much the same story. Stolen life...
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rivergem
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Posted: Tue May 8th, 2007 11:48 pm |
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That is exactly how to describe it! Stolen!
Rivergem
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annietxlda
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Posted: Sun Jun 10th, 2007 10:24 pm |
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I guess it's my turn.
WELL....  , I've had swollen glands, low-grade fever , chronic bronchitis, pneumonia, joint pain (knees since I was a small kid, hips since high school) in my hips and knees
most of my life. When I was a kid I was also susceptible to chronic conjunctivitis (pink eye - the itchy, contageous kind), and I was taking iron tablets because I was also anemic. I've had chronic coughs so bad it felt like my lungs were coming up (until I was dx with Lyme, and have since been getting my "finally diagnosed" ASTHMA treated.. So, I have been ill most of my life.
I was born and raised in NE PA (Lyme endemic area) and had always played out in the woods, near streams, climbing rocks. We had 5 mountains surounding our town and that was my playground.
We always took our summer vacations down the Jersey shore (another Lyme endemic area). I was a camp counsellor at a camp in the Pocono Mts, PA, and at a camp in upstate NY & I had attended a camp in a national forest in NW PA (more Lyme areas). As if all this wasn't enough to get exposed to Lyme ...
I worked in many places all over the country as a National Park Ranger - even at Cape Cod National Seashore where the ticks were SO bad it was sickening. I was bitten on my forehead and even had a huge, ugly rash, and the stupid drs there (in the mid 80s) could/would not dx me with Lyme.
So I was again/and still sick with all the usual symptoms, and chronic fatigue, fibromyalgia, everything. My hips had hurt me so bad all the time that I'd gone to mds and specialists, xrays, MRIs - nothing. All said they didn't see anything and wrote it off as osteoarthritis (though they never saw any) so the gave me NSAIDS. I was still in pain.
My thyroid (due to the fatigue) was checked, and was found to be off the charts hypo, so they gave me meds for that. Still had chonic fatigue anyway. Still no energy.
I went to a therapist because of my moodiness, and getting into trouble at work and was dx with depression. I was given pills for that. With several trials of pills I eventually found one that worked (sort of). Have been going to therapists and psychaiatrists for many years, but still never felt 100% (as if I knew what 100% felt like).
Anyway.... I was still taking stabs in the dark trying to find a dx to my illness. I was asking around at work and someone asked me if I had ever been to this one clinic, as the NP there was really thouough in examinations. I had not been there so I tried it, and voila - a dx! After telling this person my pain and agony, I had to answer some questions on some sheets of paper about being in any Lyme endemic areas, being bitten, having a rash, and a whole checklist of symptoms. My blood was dawn and sent to the lab and it came back positive; for Lyme disease. This was in June 2003, so I've been in treatment for 4 years now.
Since I have retired from my job on disability this past March, I have been feeling much better (no stressors). Oh, and in addition to my depression meds I am taking anxiety meds, which probably saved me from getting canned for popping one of my antagonizing co-workers in the head.
I stopped antibiotics in March, after nearly 4 years on them, and so far, so good.
I had done various combinations of oral abx and had a central line installed in my neck for 8 months of I V abx. I just felt it was time to take a break/ or stop all together (wish me luck!!).
To make a long story short, nobody could ever find anything wrong with me, save the thyroid, until I came to TX. I went to a few mds and specialists, still trying to find out what was REALLY wrong with my hips
And that's my story.
AM
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rivergem
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Posted: Sun Jun 10th, 2007 11:15 pm |
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AM,
Your's has been incredibly long life of suffering. I can't believe it has taken you so long to find someone who could put it all together.
Was your IV abx the last treatment?
I also just had my central line pulled after 10 months on ceftriaxone, at my request because I, also, was tired. August will be 2 years on treatment, currently on an oral abx.
Was the hip pain relieved with abx? I'd forgotten about hip pain.
Vicki
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annietxlda
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Posted: Mon Jun 11th, 2007 12:46 am |
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No, I started on orals, then after 6 mos I decided to try the I V - Rocephin. After 8 mos I had it pulled out at my request. I did more orals after that, up until this March when I stopped abx at my request.
The hip pain, I found out was not damage to my joints afterall, it's nerve damage from the Lyme. I have been on several different pharms, which are actually anti-convulsant/anti-seizure meds that are also prescribed for nerve pain. They do work, but they also (like many of my current meds) cause drowsiness, which was a big problem at work. 
Right now I'm on Lyrica. I also still take the Celebrex as an anti-inflam, and together they work pretty well - except lately I've been having numbness & tingling in my left thigh area, going down the side (which is usually where the pain is, lol). Like, lesser of 2 evils, huh?
My hands still get numb too, especially if I hold it in a certain position too long, like holding a phone up to my ear, holding some items in my hands in a grocery line..
So I still have nerve problems, the problems are just dfferent.
AM
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EveAvent
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Posted: Thu Jul 19th, 2007 07:48 am |
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Hi Annie!
Wow! I remember the hip pain. I had forgotten about it! I wonder if anyone is even looking at this site now. I've been on a Lyme vacation, I kid you not!!! I got a pain guy to prescribe me some serious drugs and I have done more in the past 2 months than I have in the past 6 years. 75 mcg of Fentanyl! But, alas, its wearing off and the pain is coming back. Crap.
This med not only relieved the pain, but the depression, anxiety, fatigue, rash, eyesight, hell everything. It makes me wonder if the Lyme bugs hate narcotics?? Anyway, we all need to keep talking to eachother. I am doing the Shoemaker Protocol and don't know yet what to think. I take Questran 4 times a day to remove the toxins from the Lyme bugs and I'll just have to see if it works. He makes more sense than anyone else I've read and that is a lot. His book is called "Desperation Medicine" if u ever want to read something amazing.
Keep in touch.
____________________
Never let the disease dictate who you are for more than 2 days in a row. Fight Back!!!
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rivergem
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Posted: Sat Jul 21st, 2007 04:51 am |
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Hey Eve,
I don't think anyone is on this site anymore. I've been on Lyme leave, myself...helping my elderly mom. Everytime I get on, I ask myself why I bother, figuring the site will be gone any day, now.
It's nice to get relief from the pain once in a while. I have yet to look into the protocol.
I've been concentrating on vitamin supplications. I haven't even made my July app't with my doctor...or taken a Western Blot, like she wanted.
Talk to you later...Vicki
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Freethinker
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Posted: Wed Aug 29th, 2007 07:47 pm |
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My story is titled: Don't tick me off!
Greets, my name is Freethinker. Please don't confuse me with "New Age" Freethinkers, I am a traditional one, and I believe Jesus is my light. I hold a Degree in Networking and several certificates in Networking and data processing. We build computers on the side and my candy dishes are filled with pieces parts, alas no candy o_~
I just wanted you to know I do not Baaaaah like a sheep and I am not uneducated.
My story begins with myself and my sons attending a simple birthday party for my sons' friend, who lived in the country in Southern Illinois.
The party was held under a huge tree. Approximately, two weeks after the party, i was coming out of the bathroom with a towel on my head and around my body. My son gasped "what the heck is that on your back mom?" My life has not been the same since.
The tick had lodged below my left shoulder blade and was about a quarter sized. Mortified, i looked in the mirror in disbelief.
My son was freaking out and said he could get it off. He took a cigarette and laid it on the intruder for a minute, which seemed like an eternity. Accidentally he burned me, and i started to cry and he got frustrated and went into his room.
Still clinging there, gross and big as all get out, i sat weeping. Then all of a sudden i felt something hit my foot. Looking down, omG there it was, the culprit just smiling at me. It was so big you couldn't see its legs anymore. I estimate it was there over 2 weeks since the party. Since then, I have looked at pics and discovered it was a deer tick.
Wanting to torture and mutilate it, i simply picked it up in a tissue and a burial at sea was its destiny. I never thought once to have it tested. I have always heard of Lyme disease, but just dismissed the idea in a split second. I worked 40 hours a week and attended college full-time; i was so busy i never dreamed i would get so sick.
My bouts with Anxiety came about 2 weeks later after the initial bite. Being a widow and not having a partner to check my back, i never knew if i had the bullet rash or not. When the EMT came to rescue me, with the first attack, he said, "don't worry, you're not going to die, you just are having an anxiety attack." I told them at the hospital i had been bitten by a tick. They never tested me for the antibodies, not one time.
Over the next 4 years there were endless trips to the same hospital. I saw 10 different doctors and specialists. All testing came back I was A-ok. The last straw was: i had a bad anxiety attack, off to the hospital i went. Low and behold, there sat the same EMT that took me in the initial ambulance ride, 4 years earlier, at the nurse's desk! He asked me why was i there. I told him my symptoms, he glanced at the board and said, go in bed 4 so nonchalant, and condescending. I am sure he remembered me.
I heard the nurse say, why are you sitting there to him, and who came in. He said he put someone in bed 4. There were 3 other beds with other people in them. I sat there for about an hour. I saw the nurses helping the other people in the beds. NOT ONE PERSON CAME to me and even asked how i was, let alone take a vital. I was moaning and crying. I thought i was dying. I actually heard myself asking for "someone to help me."
Fed up, i called my son and told him to come and get me NOW. When i left that hospital, NOT ONE PERSON SAID anything to me, like hey lady where are you going....nothing, nada. They just let me walk straight out of there.
I drove myself down to the next town's hospital. I had blurry vision, motion sick, lights hurt my head, sick stomach, shaking, tingling in my hands and feet, one of my pupils were bigger then the other, and other numerous symptoms. I was just so sick.
They were all so nice to me; the sweet little aid even asked me if i needed a glass of water. What a difference this hospital was. They straight away got me a wheelchair and whisked me off to a private room. The doctor came in, and i noticed he walked with a limp and was paralyzed with one hand. I believe he also had a glass eye.
He was soft spoken and asked me my symptoms and ordered a simple blood test. I dozed on and off over the next several hours, and when the results came back, he said i have the Lyme disease antibodies in my blood. He said to be sure i will order a Lyme Panel and then prescribed Doxycycline for 42 days. 100 mg tabs.
During the first 3 to 4 days after taking the Doxy, i was back to my old self! WOW, i did have Lyme and now i am so much better! Miraculously i was healed, like someone anointed me on the head and i was cured.
I waited 7 days for the lab results. Since he wasn't my primary care doctor, i had trouble getting the results from him. I never get sick so i didn't have a primary doctor. Finally, i got one of his nurses in his office to tell me the test came back negative.
There i sat in disbelief. I had all the symptoms, except the bells' palsy. I discontinued the Doxycycline after all; the test came back negative for Lyme. My little voice told me to seek more help, so the very next day after i stopped the doxy, i went to a rural health care facility and saw another doctor.
She told me, the same thing has happened to her husband, and why did i stop the Doxycycline? She told me the testing is bunk, and her and her husband had to pay out of pocket to have another test done for him, and it was positive.
I went back on the Doxycycline that day. Wow, someone who knows that I am not nuts! July 11, 2007 was my last day of doxy. Here i was thinking i am fine now and all is well in my little world. That was far from the truth.
On August 7th, 2007 i was at work when i had a major Anxiety attack and back to the hospital where they found the antibodies i went. I told them about my recent bout with Lyme and they merely dismissed it and told me i had "heat exhaustion"! I have had 5 or so attacks since. I can feel this movement, scratching if you will, in my head and then the anxiety/panic hits me, and hits me hard. I twitch, feel crawling, terrible headaches, tingling hands and feet, lights bother me, and o so much more, why go on, you all know.
I had an appointment with a Neurologist August 8th for a sleeping disorder i have, so i decided to tell him about the Lyme antibodies in my blood and he prescribed a 21 day supply of Doxy for me. 100 mg tabs. I am into day 12 with them and I still am having all the symptoms.
So back to the rural primary doctor i went. This time i saw the gentleman that practices with the doctor i initially saw. He said to me; let's fix you from having the anxiety attacks in the first place. Here is some "free" Lexapro. Take 10 milligrams per day, and i will see you in 3 weeks. I told him i was going to see a Neurologist the next day.
As i was leaving his office, i thought to myself....they are just going to mask my attacks and that's not right. It just didn't settle right with me.
Upon seeing the Neurologist, the first words he said to me was, "did your primary give you a HAPPY PILL?" i was just stunned, i sat there like a deer in the headlights. I meekly stuttered a yes. Then he said, it would help the scratching in my head and he would like me to take 20 milligrams the first week and then up it to 30 milligrams the 2nd week, but Medicaid (Illinois state aid) would only cover 20 milligrams and he would see to it i would get the other 10 milligrams in samples from him. I also told him my primary ordered another Lyme panel. He asked me, "Why did you have another Lyme test, In 3rd World countries we don't have any testing, we rely on what the patient tells us."
And wouldn't you know it, as I was checking out of his office the receptionist told me that the primary man doctor and the Neurologist are good 'ol buddies and they used to work together for years. Go figure.
I cried all the way back to my office and then some. I am sorry but i would not give that Lexapro to my dog, let alone take it myself! It would just mask my problems, they think i am a sheep, and that is far, FAR from the truth.
The next day, i wasn't crying anymore.....I WAS MAD! So very MAD!
I got on the internet and found a vast supply of information and started making phone calls and emails with others like me. That is how i came to you today.
I found out by calling The State of Illinois Health Department, that there were only 110 documented cases of Lyme in Illinois in 2006. And only 1 case in my county! The Health Department here in Illinois, says there aren’t even any deer ticks in Southern Illinois! I know what it looked like, it had black legs and it was tan in color, no spots. If I have to go out to the place where I contacted the tick and collect 6 of them, box them up and send them to the health department, then guess what? That is what I will do. I made a promise to myself; I will not/can not let this happen to anyone else.
I can not wait to go back to the Neurologist and rural doctors and ask them, "Just how many Lyme patients are you treating now?" I really hope they try to lie to me. I have a vast amount of information to bestow upon them.
I am sure others are being swept under the rug as they are trying to do to me. This is such a travesty to mankind. I thought doctors took an oath to help me get better, NOT MAKE ME HAPPY I’M SICK. It would be so different if it was one of their loved ones or themselves were being treated in this manner.
I am happy to say, I found such a sweet angel, named Sarah from a support group based in St. Louis, Mo. I am so very happy i have found answers, and i can never repay her kindness.
I am on the Oprah site, and if i have to i will drive the 4 hours to her studio (been there b4) and stand in a tick suit holding a sign until she does another story about Lyme and all the related diseases.
I am a strong woman who had just been enlightened, and I will be HEARD!
WE WILL BE HEARD!
Thank you so much for reading my lengthy story. May God Bless you and your families.
Ticked off in Southern Illinois,
Dottie L. Heffron
*Amended Saturday August 25, 2007 – I am really having a bad head day today and shaking, I am so very sick. I suspect my 21 year old has some sort of Lyme too, as he is sick.
*Amended Tues. Aug 28th - feeling better today, but always in the fog.
____________________
Don't tick me off!
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EveAvent
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Posted: Thu Aug 30th, 2007 06:01 am |
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Hey Dottie!
Well join the crowd sweetheart! If you've been on line you know what a mess this is. Like I said, I was told I had chronic fatigue for 17 years!!! I could barely move most days. All my joints hurt and I felt like I was hauling a 200 lb boulder everywhere I went. I live in Lubbock, Texas and we just don't have Lyme here either. The lyme doctor is treating over 100 patients tho???
I was set to go to the paper and they did an immediate about face. The truth is, the CDC does not want this horrid disease to get any attention. If you really want to burn, order the book "Lab 257" which basically says that the USDA, US government and Phizer drug conspired to create Lyme and then allowed it to escape into the general population. (I didn't realize that Lyme is a town in Conn) This all took place on an island called Plum Island, just off the coast of Long Island, NY. It's interesting that West Nile Virus came from New York and not the Nile. Same thing. They created these bacteria with plans to drop the infected ticks on Russia in the 1950's! I know, I know, it sounds absurd until you read what the attorney that wrote the book says.
From what I've read, we will all be ill until we ultimately die. That is SO comforting for all of us. But there is support out there and we welcome you to the site. We've really been trying to get it up and running, but everyone sort of disappeared. I'm doing pretty good at the moment. My symptoms hit me in the neck. The thing is that every person with chronic fatigue, lupus, fibro, MS, parkinsons and many other auto immune diseases could and probably does have Lyme. I become a total invalid. I got on a duragesic patch and it has saved my life. It costs as much as a car payment, but what's your life worth really?
Keep writing. I'll tell you anything I can. Get huge, huge doses of vit. C. You can get it in powder form and take about 20,000 mg a day. (one teaspoon in water)
Hang in there girl.
Eve
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Never let the disease dictate who you are for more than 2 days in a row. Fight Back!!!
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