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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
| Location: | Lubbock |
| Posts: | 27 |
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Posted: Fri May 11th, 2007 02:36 pm |
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Hi There Vickie!
Well, it sounds like you and me is in the same boat chile! Listen, some old guy that I found on some blog site that took a fancy to me told me that when they did an echo on my heart they would find FUNGUS!! You're heart is ok except for the Lyme bug making it so painful. I scored a 4 on my calcium test which is the next best thing to 0.
I loved it too because I smoke like a chiminey and drink coffee all day and all night and the tech that was doing the test said, "Ok, now I'm going to show you what all that smoking has done to your heart." He did the test and said..."Hell you score much better than me and I'm vegetarian and never smoked or drank in my life!!" I loved it. (few victories regarding my mokies) Plus my new LLMD told me he didn't care if I smoked one bit. Said he had 2 patients that were heavy smokers and drinkers (i don't drink) that were in their 80's and healthier than horses.
Mystery Diagnosis: "Deadly sore throat"; Aired 4/27/07 on Discovery Health. The Lyme story was the SECOND story called "Man searches for answers"
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rivergem
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Posted: Sun May 13th, 2007 06:26 am |
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Hey EVE,
Wow, it does sound like we have a lot of symptoms alike. I would have thought after a year and eight months on abx, that things would be getting better instead of worse. I mean, I don't know about this heart thing. Congestive Heart Failure runs in my family, so I thought I go for the check up and try to do some "preventative maintenance" if there is such a thing. And, caffiene never bothered me before?? And, the most I do is a coke or two a day--12 oz at a time. Go figure.
And, thanks on the mystery diagnose show...I'm going right now to see if I can find the episode!!
Also, have you ever heard of horses getting lyme? My grandaughter told me they had to put one of their oldest horses down, because he got where he wouldn't move and then limped when they did try to help him. I am SURE there is more to the story, but that was her story and I didn't press for more details. How sad!!
Vicki
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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
| Location: | Lubbock |
| Posts: | 27 |
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Posted: Tue May 15th, 2007 06:54 am |
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Vickie,
I imagine that most animals are at risk for Lyme.
My dad died of conjestive heart failure, but he had the most that modern medicine had to offer (about $760K worth) for a pacemaker and defib that ultimately killed him. My dad refused to do the stuff until he was bullied into the mechanical devices. I'll never do it. That defibrillator started shocking him and he took about 20 direct hits before he could get to a hospital. He was only 64 and in perfect health otherwise. What better way to go than BAM...dead! I love it, I pray for it.
Here's something that's always bothered me...my dad had the equivalent of 3 Cadillacs in his chest...state of the art..new, very expensive pacemaker and defib. He died in the hospital. So are we asked to believe that doctors let him be buried with those wonderful devices just sitting there when they could take them out and resell them? Or why not allow families to donate them to other needy people? I'm still pissed and really curious about that.
Eve
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rivergem
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Posted: Thu May 17th, 2007 04:57 am |
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Hey Eve,
I hear you. That is real sad about your dad not being helped by the very device that was supposed to save him. I know that my great aunt had one. She did very well in that it allowed her to have a regular heart rhythm and function normally whereas she would have been incompacitated otherwise. I don't think in her case, that she died prematurely. My mom is severely handicapped by her health, at this point, but with COPD, also, I don't think she's a candidate for a pacemaker.
I am totally with you, the quicker the better, and most fortunate of all! I DO NOT want to live with this or any other dibilitating disease. My quality of life is not bad considering I am still working and able to function. But, I've had enough of a taste of this to know it is not how long you live, it's how well you live.
I'm wearing this heart monitor as I write. I also found out that my thyroid level, the TSH is totally out... .01 when the spec is .4 to 5.50 I'd had my thyroid tested at the GP the week before, so I picked up the results to give to the cardio doc. For some reason, my GP did not even call me about it. It is the reason I could be having so much heart pain, my cardio pointed out, also. I forwarded the results to my lyme doctor, too, but haven't heard back from her.
Later, Vicki
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rivergem
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Posted: Tue May 22nd, 2007 06:31 am |
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Hey Eve,
You were totally right...my heart was fine, although, he did say there was a very minor swelling in the lining...surprise, surprise. Well, I didn't know about that symptom until you told me and I already had the app't with the cardio and with the family history, I just wanted to walk it through. Come back next year...ha. I haven't gotten the bill yet.
I still get the hot flashes but they've changed to my head radiating heat first, really weird...like this disease!! I don't have a rash or mouth burning. I have cut my thyroid meds in half and drink caffiene free coke now. Life is reaal exciting down here! 
Have you noticed the posts are getting fewer and far between? I mean, is there something I don't know about?
Talking to you guys, is the only connection I have out here...
Vicki
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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
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Posted: Tue May 22nd, 2007 08:38 pm |
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Vickie,
Amen about the posts. Heck I guess you and me will just hold court by ourselves. Now that you mention it, I start getting hot in my head first. I always have sweat in the neck area first! I am SO happy your heart is ok.
Listen girl, I just got this book..did I tell you already? Anyway, it's by a guy named Dave Moyer about his son being bi-polar. The thing is, his son is diagnosed "finally" with Lyme, but this guy has done ALL the leg work on figuring out what works and what doesn't. Go to the website truehope.com and read about this particular supplement.
I'm going to start taking it. I am losing so much of my thinking that if these will help, they'll be worth the $70/mo especially if I can stop buying all others.
Come on Texas Lymies...keep us company. We know you're out there!!!
Eve
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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
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| Posts: | 27 |
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Posted: Tue May 22nd, 2007 08:42 pm |
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Hey Vicki,
The other Lyme story that's coming on is June 9 at 9pm and 10th at 1am and is called "Ring of Fire" and I think it's on the Discovery Health Channel. Let's be sure to catch it and compare notes!
Eve
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rivergem
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Posted: Wed May 23rd, 2007 04:05 am |
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Eve,
I think I've seen the Ring of Fire episode. But, just to be sure, I'm setting my TIVO for it!! And, the EMPowerplus is interesting. I went on the website and looked at a few of the articles, but didn't look long enough to find Dave Moyer's story. I have to give it up for today.
It look's like it's just you and me these days! Although, I have seen a few members trickling in. I keep looking for more what's your story's. I keep thinking there has to be more...maybe the vitamin and mineral thing is on the right trail.
Vicki
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rivergem
Member
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Posted: Fri Jun 1st, 2007 06:50 am |
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| It's getting cold out here...
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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
| Location: | Lubbock |
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Posted: Sat Jun 2nd, 2007 12:07 am |
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Hey there Vickie!
I'm reading, reading...I've been to a site by a guy called Ritchie Shoemaker MD and I love what he says. He claims that he can make us much better. The website is called something like chronicneurotoxins.com. I bought his book called Desperation Medicine and I LOVE it. He knows how badly we suffer because he says it's minute to minute and that is exactly how we feel. When a doctor says, come back next month, I just wilt. I know how long that is with all these symtoms.
Hows your heart? Pounding and pressure? Me too. I haven't been online much, sorry. I know at times it feels like this is our only life line. I feel SO isolated and lonely. I hate to call anyone because I can only complain...yuck.
I'm thinking of ya. hang in there!!
Eve
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annietxlda
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Posted: Mon Jun 4th, 2007 07:27 am |
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Believe it or not I used to get the hot /cold flashes the worst in the 1990s.
I would get up out of bed shivering so hard I could barely walk - get over to the dresser and throw on sweat pants & shirt and then go back to bed.
Other times I would wake up freezing & drenched, or drenched and roasting.
I don't get that anymore (and I'm moving closer to menopause NOW, believer or not).
These days, I always seem to be warmer than other people, but my core body temp is actually 2-2.5 degrees lower than the norm.
Go figure.
AM
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rivergem
Member
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Posted: Tue Jun 5th, 2007 07:49 am |
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Hey Eve,
Sorry I've not answered...But, thanks for asking!
My heart has been much, much better. I cut my thyroid meds in half, then stopped them altogether, until I feel like I need them. I'm not advocating someone do that, but having just had my thyroid tested AND thorough testing by a cardiologist, I KNOW that my thyroid was the cause of heart palatations and feeling like it was jumping occasionally.
And, I am definitely suffering heartburn. The cause I don't know yet. I am on prevacid which has helped, but I'm also trying to figure out my triggers...onions (which I love) is one.
I'm still looking forward to Saturday's Ring of Fire on Discovery Health (I think, that channel), that you told me about.
How's the Desperation Medicine working out for you? Are you still into it? You hit the nail on the head, when you said it's lonely out here. I've stopped talking to co-workers (I know they have a hard time understanding), and only inform family members on a "need to know" basis, because they are tired, too. I'm tired, too, only the bug won't seem to go away.
Vicki
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rivergem
Member
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Posted: Tue Jun 5th, 2007 07:56 am |
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Hello AM,
I, too, have a core temp. about 2 degrees below the normal 98.6 degrees. Do you have thyroid trouble. I thought it had to do with the thyroid, course, I blamed EVERYTHING on my thyroid, until this lyme diagnose.
Are you saying that your hot and cold flashes, or was it just cold flashes, on lyme? I have both, but I am also 50 and maybe in perimenopausal, however you spell it. And, do you take antibiotic? Or, were you when you were having the flashes?
Thanks,
Vicki
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Eve Avent
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| Joined: | Thu Apr 12th, 2007 |
| Location: | Lubbock |
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Posted: Tue Jun 5th, 2007 04:15 pm |
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Hi Vickie!
Well, to be honest, I'm really scared to start Dr. Shoemaker's protocol because it promises to increase symptoms, but I beg you to get that book. It tells our tale so perfectly that you will cry with relief. He says that by taking a cheap cholesteral drug called Questran along with a diabetic drug for 10 days first called Actos to ease the herx reaction we can be well - even after YEARS of suffering! When you read some of the testimonials from his patients, well, hell...it's our story.
His theory is that if you don't escort the toxins from the body via the Questran you just stay ill. Please go to his website and pay the $50 bucks to take his Visual Contrast Test (VCS) to see just how ill you really are. I am so excited that I can't stand it. The test is just BIZARRE!!! I couldn't see anything hardly. He says that after just a few weeks of treatment the VCS test will confirm that we are recovering because you will be able to see the lines.
This guy has been on the Lyme circuit for years so I don't know why people aren't talking about him. I know that the treatment is rough, but like I said, I'd eat cow pats if someone told me it'd cure me! Still...I havn't started because I'm just feeling SO crappy that the thought of intensifying symptoms makes me cringe. Plus, I'm trying to convince my LLMD to help me through this. You know how ALL doctors dismiss anything that they themselves didn't advocate? I'm beggin the guy and I've paid him enough money to make him listen, ha!
I have the protocol in my hand. I could mail it to you because I can't figure out how to email it and I refuse to type the whole thing. You could call me anytime and give me your address. I'd really feel better if someone else were trying this with me 
I'm 52 and I've been burning up and freezing for over 2 years. It goes on all freaking day...sweating and then freezing...every 6 minutes. My temp is 2 degrees below normal too. I took thyroid meds and actually felt better for a bit then BAM, back to hell in a hand basket.
Eve
806 745-6592 anytime
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annietxlda
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Posted: Wed Jun 6th, 2007 12:40 am |
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| Yes, even on synthroid my core temp is usually 96.7 on average.
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